May 10, 2012

Today was another good day for Jason, though there was some extra bleeding from his wounds, I think he put a little too much pressure on them, when he was doing his PT exercises. He has gotten into a mode of when he is working out there he gives it his all, and perhaps I need to get him to ratchet it back, just a little. Otherwise, he had a short visit with Urology, where they determined that they needed to redo his infection culture (seems no one did the last one, and as a result they have no data), and that should take another few days. We'll probably hear the results early next week. He is feeling better, but then he has completed the regimen of the antibiotic, and it is a very strong one.

We were also supposed to pick up some more supplies today, but it is unfortunately becoming more typical for just about anything that is done with Jason. He is a unique case, and as a result the technicians don't readily see the orders that are place. For example, I worked with his case coordinator and ordered a number of things. She said I should be able to go pick them up at one location; I went to that location and they didn't have what was ordered and said it was going to be sent to the house. We then went over to pick up a Rx from the pharmacy and they said they had part of that previous order I was just talking about. Only thing is we had ordered a month's supply (about 120 pieces) and they only gave us 18. I had to go back to the Coordinator and she walked back over with me and got them to give me all that was requested. As I said, in Jason's case things are different and so they people don't always know what is going on. A little frustrating sometimes, but fortunately I've learned who to go to, to get it corrected.

Tomorrow there are a couple more appointments, and then a restful day at home. I didn't get my bike ride in today, so I'll strive for it again tomorrow. Thank you, all for all your continued support and prayers.

Comments

  1. AnonymousMay 10, 2012 at 9:46 PM

    My hopes and prayers are that you can overcome this infection and the HO causes no more problems.

    These are excellent pictures!! I can't get over how much the kids have grown! You are looking so strong, Jason. Keep up the great work! I'll call in reinforcements in the prayer chain, Jason. Take good care of yourself.

    Karen & Rob
    Livermore Friends

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  2. LynnMay 10, 2012 at 10:30 PM

    Sorry about all the problems. At least you have a case coordinator to help you out!
    Know that I'm here praying!
    John 11:25-26: Jesus said unto her, I am the resurrection, and the life: he that believeth in me, though he were dead, yet shall he live: And whosoever liveth and believeth in me shall never die. Believest thou this?
    My email address

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January 2017

January 2017
Jason gets a visit from Gen. Jon Monett

January 2017

January 2017
With Gary at the GSF Office

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