Jason started today with a couple of bowls of Frosted Mini-Wheats. It seems to be his favorite cereal. The girls were still sleeping while we ate - I had Wheat Chex, and only one bowl. The girls got up just as we finished, and so I got them Kix to have this morning. Jason was still dealing with the pain, and he said it wasn't as bad as it has been the last couple of days, so that was good to hear. I got the girls ready and we were off to day care. As Jason got on to his chair and then into the van, his pain level went up. That one area, near the sacrum, where it has opened up again, is really giving him some problems. The good news is that on Thursday we head over to UCSD for the hyperbarrik treatment. We found out today that the treatment will probably go for several consecutive days, so the other appointments will have to be cancelled, or possibly set for later times.
We found out most of this information while we were talking with Jason's case manager, and then we also asked her to set up another appointment with the Ortho doctor to discuss his HO, and what is going to be going on with that. Dr. Pyo, his primary doctor kind of started that discussion with us, just a little earlier in the morning, as he was asking us what was going on, and what was the plan. I still need to send off one piece of information to the coordinator at UCSD, and then it should make it a little easier to get in smoothly. The only other thing we needed to do was to pick up Jason's Rx for the pain relief and then we could head home.
Tonight, once we were all back at the house it was kind of relaxed. The girls were in bed at about 20:30 (8:30pm) and Jason was kind of sleeping in his bed. The good thing about the pain meds is that it allows for some blockage of the pain, though it also puts you to sleep. The sleep is kind of a problem since it messes with schedules and I always worry about Jason taking all his meds, at the right time. Jason has set his phone to alarm at the times he is to take his meds, and that helps, but I'm not always confident that he is going to wake up when the alarm goes of. He can be a pretty heavy sleeper. I guess I just need to trust technology more, as he hasn't missed any yet, and he always seems to wake up. Tomorrow is going to be another busy day with a more "regular" schedule of appointments. I hope it makes for a better day.
Thank you, all for your continued support and for all your continued prayers.