June 4, 2012

Jason started today with a couple of bowls of Frosted Mini-Wheats. It seems to be his favorite cereal. The girls were still sleeping while we ate - I had Wheat Chex, and only one bowl. The girls got up just as we finished, and so I got them Kix to have this morning. Jason was still dealing with the pain, and he said it wasn't as bad as it has been the last couple of days, so that was good to hear. I got the girls ready and we were off to day care. As Jason got on to his chair and then into the van, his pain level went up. That one area, near the sacrum, where it has opened up again, is really giving him some problems. The good news is that on Thursday we head over to UCSD for the hyperbarrik treatment. We found out today that the treatment will probably go for several consecutive days, so the other appointments will have to be cancelled, or possibly set for later times.

We found out most of this information while we were talking with Jason's case manager, and then we also asked her to set up another appointment with the Ortho doctor to discuss his HO, and what is going to be going on with that. Dr. Pyo, his primary doctor kind of started that discussion with us, just a little earlier in the morning, as he was asking us what was going on, and what was the plan.  I still need to send off one piece of information to the coordinator at UCSD, and then it should make it a little easier to get in smoothly. The only other thing we needed to do was to pick up Jason's Rx for the pain relief and then we could head home.

Tonight, once we were all back at the house it was kind of relaxed. The girls were in bed at about 20:30 (8:30pm) and Jason was kind of sleeping in his bed. The good thing about the pain meds is that it allows for some blockage of the pain, though it also puts you to sleep. The sleep is kind of a problem since it messes with schedules and I always worry about Jason taking all his meds, at the right time. Jason has set his phone to alarm at the times he is to take his meds, and that helps, but I'm not always confident that he is going to wake up when the alarm goes of. He can be a pretty heavy sleeper. I guess I just need to trust technology more, as he hasn't missed any yet, and he always seems to wake up. Tomorrow is going to be another busy day with a more "regular" schedule of appointments. I hope it makes for a better day.

Thank you, all for your continued support and for all your continued prayers.

Comments

  1. AnonymousJune 4, 2012 at 10:03 PM

    I can understand how that area would be so painful :( Praying for you, Jason. Keep us posted on your progress.

    Always sending good thought and prayers to your family. My family is praying for you folks also.

    Take good care,
    Enjoy the Giants game if you can go?
    All our best,
    Karen & Rob
    Livermore Friends

    ReplyDelete
  2. LynnJune 4, 2012 at 10:55 PM

    Know that I'm always here praying!
    Isaiah 40:28-31 Hast thou not known? hast thou not heard, that the everlasting God, the LORD, the Creator of the ends of the earth, fainteth not, neither is weary? there is no searching of his understanding. He giveth power to the faint; and to them that have no might he increaseth strength. Even the youths shall faint and be weary, and the young men shall utterly fall: But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.
    My email address

    ReplyDelete

Post a Comment

January 2017

January 2017
Jason gets a visit from Gen. Jon Monett

January 2017

January 2017
With Gary at the GSF Office

Popular posts from this blog

April 29, 2018

Image
I know I haven't been keeping up with the blog and posting as often as I said I would, but I guess that's what happens when the days really do start to seem more normal, and don't feel like there is much to update about. Then when there is something exciting going on, by the time I can get to the blog I'm pretty well worn out for the day and then I'm slow to get to it afterward. Well, I will continue to provide updates, as I can and we'll just have to see where it takes us. Jason's sled hockey season is over and he had a great time with it. He was not able to go to the final tournament, in Chicago, due to travel challenges. First challenge was simply getting there - there really isn't any way to get there, that doesn't simply totally wear him out, and then he needs the next day to recover. We think we may have figured out a way around this, though it actually means more travel time, rather than recovery time. We have found a van that can provide a ...
Read more
Again, I have no reasonable excuse other than to say I got side tracked. On the last post I mentioned that Jason had gotten injured, while playing in the hockey tournament. Well, as it turned out it was a more serious injury than either of us had suspected. The outcome was that he lost some soft tissue and a section of his pelvic bone was exposed (about the size of a quarter) and he is now required to have a wound-vac so that it can heal properly. This means that he has to spend most of his time in bed and can only be up in his chair for no more than 20 minutes at a time, and that followed by hours of rest time. The rest time is for the injury, and not necessarily for Jason, as he isn't tired. As you can imagine, he gets very board with this "life style" and wants to get up and go do something. We've been going in to wound-care frequently, once or twice each week, and they keep telling us, "...we'll take a look at it next week, to see what happens next....
Read more

Happy St. Patty's Day!

To day was a good day for Jason, as they removed the breathing tube from his mouth and throat, and his medications and pain meds were lowered. All this lead to him being able to begin talking to us, and have visitors, other than from family. On top of that, Bridgette came with the girls today (she went a short time ago to go pick them up), so he'll be able to see and speak with them as well. Of course tomorrow is Friday, and he is scheduled for another surgery (I'll talk more about that later) so we will need to go visit with him early in the morning, and then later tomorrow we will be able to visit with him again. He was visited by a bunch of different doctors with all of them asking him the same basic questions of, "How are you feeling? Where do you have pain? Can you tell me where you are?" etc., etc. Then came the psychiatrist, who wanted to be sure of his mental abilities and neurological issues. He began with those same questions then asked, "Do you know wh...
Read more