Today started out a little better, but by the end of the day Jason was worn down about as much as I have seen. The demands of keeping up with his needs, as well as those of his daughters has been challenging, but I think we are beginning to get into more of a rhythm, and in a matter of a day or so it should be easier. I'm looking at ways of streamlining our activities so that we don't use so much time to do the different things that we need to do. Like working with the medical folks so that we don't have to go to the pharmacy on a weekly basis, and maybe allow us to have a month supply. Going to the pharmacy, even with Jason's "fast pass", takes about an hour to get a prescription filled. I've hear stories of some of the patients waiting four or five hours to get prescriptions filled. Not sure why it takes so long, in Bethesda it seemed to work much more smoothly and quickly, for everyone.
On the good news side today - we were told that the power chair is supposed to be arriving this week, so that means maybe tomorrow, AND his seat is supposed to be with it. I am so looking forward to the new seat, and I know Jason is also. The one he has right now is getting a little worn and broken down. Not sure about his new manual chair, but we should be hearing something on that soon.
Thank you, all for all your continued support and prayers, we continue to benefit.